At the 31st International Conference of Alzheimer’s Disease International (ADI), held in Budapest, Hungary, from April 21–24 2016, Kate Swaffer, MSc (Dementia Care), BPsych, BA, Grad Dip Grief Counseling, RN, from Dementia Alliance International, discusses her experience of participating in clinical research and the desire of people with dementia to be involved in such research.